SIBS The Sibling Project

Illustration of young and old people

Image: sibs.com

Duration
01.01.2012–

The overall vision of the project is to prevent challenges experienced by siblings of children with chronic disorders through enhancing parent-child communication. 

Contact

About the project

The sibling project is a collaboration between Frambu Resource Centre for Rare Disorders and the Department of Psychology, University of Oslo. See the project website for more information:

The SIBS website

Background

SIBS is an intervention developed for siblings and parents of children with chronic disorders. The SIBS intervention has been developed within the overall «Sibling project» led and initiated by Frambu and is part of a larger effort to prevent mental health problems and other challenges experienced by siblings. The project group works on multiple levels and with multiple international collaborators with research, development, and implementation with siblings, parents, and health providers as target groups.

Sub-projects

The sibling project has multiple sub-projects which include an ongoing randomized controlled trial, the development of MiniSIBS for preschool siblings, KomSIBS which concerns implementation in Norwegian municipalities, and SIBS-ONLINE which is research and implementation of the online version of the SIBS intervention. See www.sibs.no for more information.

Patient involvement

Youth Mental Health, Association for Parents of Children with Disabilities, Autism Association, Association for Children with Heart Disease, CP Association, Ups & Downs (Association for Down syndrome), Adults for Children,  Mental health Youth, Mental health, Norwegian Association for Children with Congenital Heart Disease.

Participants

Publications

For publications, see the SIBS website.

Funding

  • The Research Council of Norway
  • Norwegian Women's Public Health Association 
  • National Advisory Unit on Rare Disorders
  • Norwegian Directorate of Health

The SIBS logo

    Logo for FRAMBU

 

Logo for Norske kvinners sanitetsforening

Collaborators

  • Multiple national municipalities and hospitals, including Lillestrøm, Baerum, Asker, Raelingen, Oslo, Nordre Follo, and hospital trusts Lovisenberg, Innlandet, Telemark, Ostfold, and St. Olav's Regional Palliative Teams (PALBU) in South Eastern and Mid-Norway Health Regions. 
  • Mulitiple international collaborators including Yale University and Baylor University (USA), University of New South Wales (Australia) and the Danish Social Welfare Board (Socialstyrelsen Denmark).
  • Frambu Resource Centre for Rare Disorders
Norwegian version of this page
Published Feb. 26, 2025 11:41 AM - Last modified Sep. 29, 2026 2:29 PM